Help us ensure best diagnosis, treatments & support for children born with brain disorders

Every two days, a child is born in Australia with a genetic epilepsy. Genetic epilepsy can cause serious brain damage, and children can experience life-threatening seizures several times a day. Children may lose the ability to talk, walk and even smile. Families can feel confused and alone.

 

Our clinical research is designed to give children with genetic epilepsy and their families hope. Using the latest genomic technologies, our research is identifying genetic causes for many children. We work in collaboration with international researchers to show how new treatments can be tailored to a child’s genetic diagnoses: opening up the possibility of reducing seizures and even curing these individually rare and chronic conditions. We are developing resources with families to educate, support and empower.

 

Your donation will enable us to progress ground-breaking research in gene-discovery, precision medicine, and improved models of care, improving these children’s lives.

 
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PRIVACY NOTICE: Information contained in this form will be used for the purpose of processing your gift and for directly related purposes such as audit, management and operational activities of UNSW Philanthropy. Unless you have requested this gift to be anonymous, UNSW may disclose your name and gift information to CoGENES. Provision of this information is voluntary. You can submit a request for access to or amendment of your personal information by contacting giving@unsw.edu.au. We handle your personal information in accordance with the UNSW Privacy Management Plan.

 

The Collaboration on Genetic Epilepsies and Neurogenetics, Sydney Children’s Hospitals Network (CoGenes) has been established to ensure children born with genetic brain disorders get the best medical care and supports to enable them and their families to live happy and fulfilled lives.

CoGenes is a collaborative group of clinical researchers, doctors, nurses and genetic counsellors from Sydney Children’s Hospital Network genetics and neurology departments and the School of Women’s & Children’s Health, UNSW Medicine. Our research is guided by a group of parents of children with genetic epilepsy. More information on our research can be found at this website.

Resources on genetic epilepsy can be found on the Paediatric Epilepsy Network website.

Contact Us

 

Ruby Pradhan
Development Coordinator - Medicine & Science
UNSW Division of Philanthropy
E: r.pradhan@unsw.edu.au