SARI – Support our research with a donation

 

SARI, the Sarcoidosis Advocacy and Research Initiative has been established to provide a forum for Sarcoidosis sufferers and a resource to encourage Researchers and Clinicians to work together to find better ways of managing this little known condition and to ultimately find a cure. SARI is a joint initiative supported by the Faculties of Medicine and Health & Engineering, to advocate for greater awareness and raise funds to support research in this little know condition.

Sarcoidosis in Australia is a multi-system disease of unknown aetiology. Systems involved typically include lung parenchyma (66%), thoracic adenopathy (58%), skin (22%), ocular (18%), joint (11%), gastrointestinal tract (5%), central nervous system (3%) and hypercalcaemia (3%). Cardiac sarcoidosis (CS) may represent 2-5% of all cases, although autopsy studies and modern cardiac imaging suggests that this may represent only a small proportion of CS patients.

Sarcoidosis may present acutely, with a sudden and severe onset, or may have a slow, insidious presentation. Disease duration and severity vary. Some patients may have a relatively short disease duration of several months to a year or two, with the disease then going into remission, either spontaneously or with the help of medication. Other patients may develop a chronic form of sarcoidosis in which the disease remains active for many years and usually requires medicating. Both acute and chronic disease may produce serious medical issues, but it is usually chronic patients who suffer from the most serious disease. In general, more patients are acute and achieve remission than those who become chronically ill. In general, most patients can achieve symptom relief with appropriate medication.

Every amount will contribute towards pooling resources to fund research projects, and contribute towards mounting major multidisciplinary research on Sarcoidosis at UNSW Sydney.

 
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SARI is a multidisciplinary research effort involving clinicians from the Faculty of Medicine, St. Vincent’s Hospital, the Prince of Wales Hospital and the Victor Chang Cardiac Research Institute as well as data scientists and biomedical engineers from the Faculty of Engineering at UNSW. Your donation will ensure ongoing research on the causes, management and cure for sarcoidosis and enable us to advocate on your behalf.

 

Contact Us

Ruby Pradhan
Development Manager,Clinical Medicine
UNSW Medicine & Health

E: r.pradhan@unsw.edu.au